www.cdhsupport.org
Sorry, I'll keep looking for more links that are actually interesting and helpful.
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Why a Roller Coaster?
As we were learning about our son's case of CDH, we were repeatedly told the experience would be a roller coaster. There would be great days and there would be bad days. He would have honeymoon periods, then crash. Things can change by the day, hour, minute.... It's the nature of the diagnosis. Being prepared to enjoy the highs and endure the lows is vital to being a CDH parent.
My Goal
As the mother of the first CDH baby in a recent "batch" in our area, I feel like the mother of all of them. My hope is to create a support system where all CDH parents can come and express their joys and pains, and develop friendships with other CDH parents as we ride the roller coaster together.
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